Welcome to Wilmstumour dot com
We are a family who have been touched twice by Wilms tumour and wanted to have a place to share the information, resources and stories we have encountered on our journey.
We have gathered many resources here that we hope will be of as much use to others as they have been to us.
This is NOT a medical site. Please read the site disclaimer.
The navigation bar across the top of the site will connect you directly to the various pages within this site listed here.
Information:
What is Wilms? - brief explanation
Treatment - breakdown of staging and histology
Genetics - information regarding genetic aspects of Wilms
Nephrogenic Rests - info
Contact Us
Resources:
Books - books that may be useful and informative
Organizations - Organizations related to Wilms, cancer and wish-making
Websites - medical, support, info related sites
Mailing Lists - online e-mail support
Links:
Personal Stories - list of personal websites of folks dealing with Wilms
An e-mail discussion list has been created on ACOR.org for caregivers of children with
Wilms tumour called Wilms-Kids. If you're interested in meeting and talking to other folks who have dealt with (or are currently dealing with) Wilms tumour you can sign up at the following url:
http://listserv.acor.org/archives/wilms-kids.html
There is also an e-mail discussion list on ACOR.org for long-term survivors of cancer [all kinds] where folks can discuss various issues that come up in life after cancer.
You can sign up for the LT-Survivor list at:
http://listserv.acor.org/archives/lt-survivors.html
Please support childhood cancer research. Donate to your local Children's Hospital. Volunteer your time to one of many organizations that assist people dealing with life threatening illnesses. Give blood, register to be a bone marrow donor.
Every effort helps.
There is an image of a rainbow on this site to remind us all that storms don't last forever.
A long time ago, a million years BC,
The best things in life were absolutely free.
But no one appreciated a sky that was always blue.
And no one congratulated a moon that was always new.
So it was planned that they would vanish now and then,
And you must pay before you get them back again.
That's what storms were made for.
And you shouldn't be afraid ... For,
Every time it rains, it rains
Pennies from heaven.
Don't you know each cloud contains
Pennies from heaven.
You'll find yor fortune falling
All over town.
Be sure that your umbrella is upside down.
Trade them for a package of sunshine and flowers.
If you want the things you love,
You must have showers.
So when you hear it thunder,
Don't run under a tree.
There'll be pennies from heaven for you and me.
Lyrics - Pennies from Heaven
Submissions, suggestions, links and comments for this site are always welcome!
Updated June 3rd, 2010.
|
