I finally got out of bed at around 5:30 am. I took a shower and drank a few cups
of tea until my friend got out of bed about half an hour later. She had called
her relatives the night before and they were going to pick her up from the
hospital that day.
We arrived at around 8:30 am and waited for a few hours. Bob's mom and my mom
arrived together. Bob's dad arrived about an hour later and I met him in the
parking lot in front of the Emergency room. He wrapped his arms around my
shoulders and cried.
When it was close to the time of the CT scan, Luke was taken over to a bed
in the Emergency room so a tube could shoved up his nose and slid down his throat
(necessary for the contrast used in the scan). An IV was also inserted into
the back of his tiny left arm and his whole hand was taped down to a long, white
plastic board. I let the nurses and my mom be with him during those procedures,
as I knew that I wouldn't be able to handle it (I faint at the sight of
needles and blood).
After the tubes were in place, Bob carried Luke down to the CT scan room.
We were introduced to a couple of doctors/specialists (I can't remember their
names) and Luke was carried into the exam room and placed upon the table. He was
really upset about being there and he was crying and squirming to get up. A
needle was placed into the IV line in his hand and as the doctor squeezed the
contents into the line he said that Luke would now be going to sleep.
I was not prepared to witness what I saw. My fussy, bright, vocal child
suddenly goes quiet and you could see the light dim in his eyes. When he went
out, his eyes were still wide open. Watching that made me feel sick to my
stomach and I wanted to scream. Bob and I were quickly ushered out of the room,
which wasn't really necessary because both of us seemed to be running out of
there instinctively anyway. We held each other in the hall and cried on each
other's shoulders.
Bob's mom couldn't handle being there anymore so she left. Bob, his dad,
my mother and I sat in the waiting room and waited. Dr. Schultz, the oncologist,
sat down and talked to us. He started by explaining how the protocol for
Wilm's tumor would be a bit different then we were led to believe the night
before. Instead of having major surgery on Sunday to remove the kidney and
tumor, Luke would be started on a course of chemotherapy for around 5 or 6
weeks. It was hoped that by doing that first, it would shrink the tumors
making removal and shaving a much easier process. We were told that on Sunday,
a biopsy would be performed and at the same time a VAD would be implanted into
Luke's chest making IV access much easier in the long run [no repeated iv pokes
in arms/legs, no worries about collapsing veins, etc]. He also said that the
surgeon, Dr. Webber, would also take care of the testicle issue at that time
as well. Bob's dad and my mother started asking him some questions and I lost
interest at that point. I just wanted them to come and tell us that we could go
to Luke.
A couple of hours passed before Bob and I were led to the recovery room to be
with Luke as he woke up. He seemed irritable and cranky. He wasn't pleased.
It was good to see him like that.
We were there for another couple of hours, as a room was made available for
Luke on the third floor in the oncology ward. By dinnertime we were settling
into our hospital room. People, faces, came and went. They talked. I don't
remember hearing too much of what they were saying.
We knew that he'd be going down to the O.R. the next morning and again I'd
have to stop nursing him earlier than I would have liked to. I laid awake for
most of the night beside Luke in the hospital bed. Bob tried to sleep in
the cot beside the bed. Nurses came in and out every hour to take temperatures
and blood pressures. I don't think I could have slept even if I wanted to.